Bumping this thread again today to help Rachael find a diagnosis and cure for her pulmonary embolisms...
If possible please convey to Rachael that she is an inspiration! Her calm demeanor in the face of her hardship is worthy of imitation. We look forward to hearing updates on her health and wish her the best of everything in her fight. Please tell her she is beautiful and thank you for sharing her story with us!
I will; thank you...it has been exactly one year since this happened and she just finished her first half marathon in under two hours (1 hour and 51 minutes to be exact). There are still lots of symptoms and she is still on an expensive medication. We won't know much else until the next follow-up in December though...thank you!
First of all, I would say she is so lucky to be alive, pulmonary embolisms ae very dangerous. its amazing she is still alive,am optimistic that there will be help for her as long as we continue raising the awareness.Rachael was recently diagnosed with multiple massive pulmonary embolisms. She was hospitalized for 7 days with a tube and catheter in her lungs. Her medicine of coumadin was not effective and was switched to xarelto. She still receives blood clots and the doctors do not know what is causing them to form.
They have done all they can in town and recommend traveling to Mayo clinic to undergo further tests.
Rachael is in and out of the hospital on a weekly to monthly basis and is unable to work. She goes for blood tests, ultra-sounds, CT scans, and x-rays to stay monitored.
She has endless hospital bills and has been paying them with her life savings, which is quickly dwindling down.
It is a miracle Rachael is alive and everyday is a battle of uncertainty. She remains strong, hopeful, and determined to heal.
Please support, donate, or do whatever you can to help Rachael find a diagnosis and be able to continue her treatment.
Here are the links:
Help Rachael Find A Diagnosis! | Medical Expenses - YouCaring.com
Help Rachael Find A Diagnosis! by Rachael Rasikas - GoFundMe
Please reply to this thread or PM me for more details. Any support or donations you can give would be huge!
Yes, we are very optimistic and thankful that she is alive and well. Thank you!First of all, I would say she is so lucky to be alive, pulmonary embolisms ae very dangerous. its amazing she is still alive,am optimistic that there will be help for her as long as we continue raising the awareness.
Thank you. We went into the hospital this past week for more tests as we thought another blood clot had formed. Fortunately the tests were negative. We are now waiting for more follow-up appointments in January. It can be frustrating not to have any diagnosis and just take this month by month...but we are trying our best. I really appreciate your support.
As an update to this thread, I have re-configured Rachael's campaign and the new link can be found here...please consider either donating or SHARING with your friends and family:
Here is the updated story as told by me:
To whom it may concern:
My name is Derek; I am Rachael's boyfriend (and future husband) and would love if you could spare the time to read Rachael's pulmonary embolism / blood clot journey as best as I am able to document below.
Rachael was misdiagnosed several times in late 2013 after severe respiratory pains. The first two trips to the emergency room were diagnosed as pneumonia and she was sent home with standard prescriptions.
Rachael's father, an internist, discovered that she was not running a temperature and that pneumonia was not a possibility. Upon urgent instruction, Rachael was taken back into the hospital for a CT-Scan. We did not yet know that this decision literally saved Rachael's life.
The CT-Scan revealed severe lung damage and a collection of blood clots lodged throughout her lungs: she was immediately admitted to the emergency room and placed on narcotic pain and inflammation medication and heparin: which is blood thinning medicine administered via IV setup.
Rachael was kept in the hospital for 7 days and endured a large magnitude of pain from the damage that had been done: she was unable to use the restroom for long periods because of the pain associated with it and she had a procedure where a cathoder was drilled into her back and into the lungs for draining the fluid.
Note that Rachael is NOT a smoker NOR a drinker. In addition, she is an avid RUNNER and weight training enthusiast with a healthy conscious diet: all the more frustrating of an experience this contributes to.
The entire experience was a near-death situation; had there been blood clots in the brain, Rachael would have been subject to a 50/50 life and death emergency surgery. We are thankful she did not have to have that procedure.
Upon being released from the hospital , Rachael was placed on Coumadin (Warferin) and required extensive screenings and blood draws for her INR: the hospital bill along with all of the CT scans have been extremely expensive for her. She is still in pain at times and has limited lung capacity: her running has become even more challenging after this emergency.
To complicate things, Rachael returned to a specialist the following April after experiencing similar episodes to the first blood clots. It was discovered that she now had clotting in her legs. Although it is fortunate that the legs are farther from the brain, it was also a serious concern now that it was discovered that Coumadin was not the answer.
Rachael was placed on a brand new drug called Xarelto: it has not been on the market long enough to even have a generic version. This is disappointing for two reasons:
1) The drug is so new that long-term complications are still unknown.
2) It is very expensive from month to month.
She receives check-ups every 6 months and so far, although the discomfort and cold feeling from thin blood are not necessarily a joy to deal with, she had been clot free. We are praying she stays this way.
The specialists in Grand Rapids, MI have exhausted all 13 tests for the origin of the blood clots: and nothing can be discovered. It is the specialist's recommendation that we visit Mayo Clinic for a complete round of re-testing and evaluation as Rachael appears to be an anomaly case: this will be extremely costly. Insurance will cover a portion, but the remainder expenses for the tests, the specialists, the travel, the accommodations, the time spent at the clinic, etc...are yet to be funded.
We are in desperate need to get Racheal into Mayo Clinic this summer and would appreciate any support, prayers, or financial gifts you may offer. In any case, we simply appreciate you taking the time to read Rachael's story and are comforted by your prayer and concern.
Please, help us get to Mayo Clinic this summer if you have any financial means to assist: it will be roughly a $12,000 trip overall; and if there happens to be any leftover proceeds, they will ALL go to further research for rare cases with limited studies such as Rachael's.
Thank you for your time and God Bless!
I am bumping this thread because it is extremely important to me: please share on Facebook and Twitter via the donation page: